It's hard to explain to someone who has no clue. It is a daily struggle being in pain or feeling sick on the inside while you look fine on the outside. Please share this message if you, or someone you know, has an invisible illness: hemophilia, von Willebrand disease, PSPD, depression, PTSD, fibromyalgia, bipolar, lupus, MS, arthritis, cancer, heart disease, epilepsy, muscular dystrophy, autism, etc. Never judge what you don't understand!
LivingWithVWD.org is a dedicated patient-to-patient support community for families affected by Von Willebrand's Disease (VWD). LivingWithVWD.org is powered by BensFriends.org, patient support communities for rare diseases, and is run by volunteer moderators who have been affected with Von Willebrand's Disease.
You asked for them, and now they're here! Grab your limited edition "I Love Someone With von Willebrand Disease" shirts while they last! of the proceeds will support our vital programs and services to the bleeding disorders community.
The World Federation of Hemophilia / Federación Mundial de Hemofilia has created another infographic to help educate and spread awareness. Check it out for important statistics and information about the symptoms woman with bleeding disorders experience
A cool bracelet for people with Von Willebrands disease; I have Von Willebrands; I bleed therefore I am. What is von Willebrand Disease? Von Willebrand Disease is a bleeding disorder caused by a defect or deficiency of a blood clotting protein, called von Willebrand Factor. The disease is estimated to occur in 1% to 2% of the population. Von Willebrand Factor is a protein critical to the initial stages of blood clotting.